Buaslbutterfly’s Blog

{June 30, 2011}   Finally made contact

I have an appointment to start up therapy again. My physical therapist asked how I was doing and I reported that things were worse than prior to the baby physically but everything else was well. She asked if I had contacted or tried another person and I reported that I had.
Unfortunately the physical therapist in Mechanicsburg, PA had appointments that only go til 4:30pm. From where I worked, there was no feasible way of getting over to the appointment without having problems.

Plus, as my husband and I had talked it out. I had success with the physical therapist I made contact with. So I have an appointment in the near future to get the ball rolling again. It means a sacrifice in commute, but if I get myself out of this rutt, I might be not as negative as a person I have been lately. I think I’m heading up the hill the other direction in this ride.


A friend I have that has been a big support were talking about the need for support groups. This was a thought that I came up with.

What if ObGyn’s in various areas, created a Support Group where they referred patients to when they learned about Vaginismus. This support group could serve various purposes for the women in the group. It could provide a safe haven and a knowledge of other individuals like them. Unlike other public groups, where you learn about it through internet, or by newspaper. This group could only be accessed by invitation of a OBGyn.

Especially due to the nature of the condition. It would help to ensure the privacy and respect of the members. Members could provide favors for one another. They could meet to talk about presenting ones condition and allow the person to be comfortable talking about their condition. The members could also provide support if someone wanted someone who understood their condition to go to an appointment. It could also be a place for people to talk about the various professionals in the local areas.
I think friendships and connections with non-family and non-medical and non-professionals whom have the condition is so vital. At times the things I’ve talked with my friend that I have never met, are things I just can’t communicate to anyone else.
It is just a thought, but curious as to what others with my conditions would think.

A lot has happened since the last post. Unfortunately, not soo much with the curing my vaginismus problem or getting a hold of my physical therapist. I’m going to do that this week. My husband ended up in the hospital for abdominal pains due to a blockage. We lucked out that he was only admitted for observation and that the blockage cleared itself. We almost thought he was going to have abdominal surgery. Unfortunately, it looks like that is a definate possibility in the future.

I do see that the media is bringing more aware of a condition that for soo long has been hidden. I’ve seen a total of 3. I liked certain aspects of all, and didn’t care for certian aspects. I really liked that 20/20 posted up about vulvadania. It didn’t really focus in on Vaginismus but it at least made an awareness to something most people don’t know. I commend the three women whom put themselves up infront of others.

Then MTV did a really good episode on painful sex. It addressed Vaginismus and it had 3 girls, who again, put themselves up on television so that others can learn about the condition. Bravo to you girls. More of us should be willing to say “Hey, I have a problem with sex. This doesn’t make me any less of a person.” Unfortunately, society has a way of making us feel a certain way.

TLC just recently did a story which addressed one couple. I thought it was interesting how it only highlighted Women’s Therapy Center in New York City. It almost made it seem like they were the only answer. I want to again recognize the couple whom posted their feelings and experiences out to everyone. I wished that TLC had also included some other sucess stories of girls who didn’t get professional help and those who got other professional help. That was it’s only draw back.

The other two had shown many ways. Not that I have proof, but it seems like it was an advertising ploy for one group. Why not present that there are other methods of reaching sucess. I’ve seen women whom have done the dilators by themselves without a doctor, physical therapist, or friends help. Cure themselves. Very hard to do, but it has happened.

There are girls out there that will go for botox and swear by it. I found physical therapy to be my reach to the end. I will go back to it. All’s I can say is that there is no cookie cutter method. Even going to one professional, if the person isn’t the right fit, doesn’t mean its the right method. Patience, respect for oneself, and a end plan are important to reaching sucess.

I will say that something I don’t really care for, and I know its what they do to get people to watch the show. For example, TLC. They titled their program “Strange Sex”. How many of us girls before knowing the name of our condition and afterwards thought “I’m weird.. I’m a freak.. noone would really want me.” I wish they would have titled it something different. Strange sex would be to me some physical action that is different from anyone else. I understand that putting a medical name may mean that they reduce their audience. I feel that term to be offensive.

We are not weird. Yes we have a condition that makes sex difficult and painful. Its curable. We are not permanently unable to have sex. It may take time and patience, but it is curable. Maybe its just me, but I find the term strange sex maybe not the best choice of words.

et cetera